Friday, May 30, 2014

May 2014

May 1 2014
My pulse when I woke up was at 77.
I took 5mg of methimazole at breakfast.

My highest pulse was at 111 doing errands, consoling my toddler as he doesn't want to let go of a toy at the store and going out in a 96 degree weather.  It was very hot.
So before taking my son to my brother's house to go swimming.  I took one propanolol 20mg.
My pulse went down to 83-89.

Towards dinner time, I took another 5mg of Methimazole.  I just didn't want take any chances to get into hyper because I was experiencing hot temperature sensitivity.   Although today was a very hot day.  My pulse prior to bedtime was at 95BPM. 

May 2 2014

I woke up with a pulse of 67.  I took 5mg of methimazole at breakfast.  So far a good start.
After waking up my pulse went up to 90 with other factors contributing to it like playing with the kids, long driving(1 hour) and errands.
I played just dance.  My HR was from 97-103 for 20mins.
Within 3 hours of playing that game my pulse came down 81-89.
I didn't want to take anymore propanolol but I have to.  I can't just stop taking it suddenly.  According to the post from other websites that I've been reading it might cause more harm than good to my heart.  So right before bed time I took 10mg of propanolol.
I felt my body puffing up and skin hardening today.  I probably overdose on these meds. 

May 3 2014
Pulse rate at 67 just waking up still in bed.  Pulse rate at breakfast was at 80.  I took 2.5mg of methimazole.
Maybe the puffiness of my body will decrease.
I worked out today on the treadmill and dumb bells . 40 mins, Pulse at 141 ave, 358 cal burned.  There was a mild muscle spasm after working out but maybe I just needed to drink water.  So far no muscle spasm towards the end of the day.
At bedtime my pulse was at 74, so I took 10 mg of proanolol.

May 4 2014
Woke up with a pulse at 72.  I took 5mg of methimazole
Muscle was sore due to working out yesterday.  Good news!!  I wasn't having episodes of muscle spasm.  I will take muscle sore anytime rather than sudden muscle spasms.  I googled propanolol and muscle spasm together.  I found out that propanolol causes muscle spasm.  I thought it was methimazole. Today I can't tell anymore if I am hypo or hyper.  I will go to the lab tomorrow to get my blood drawn.  I was experiencing cold temperature sensitivity but pulses averaging in the 80s so I concluded that I was probably normal at this point.
I took 10mg of propanolol prior bedtime.  

May 5 2014
My pulse waking was at 73.
I took 5mg of methimazole.  
After breakfast, I thought my pulse was a bit high upper 70s.  For the past few days it was in lower 70s around this time.  So I took another 2.5mg before taking my son to the mall.  Walking around at the mall my pulse was upper 90s lower 100s.  Then it went down all the way to 81 prior to working out.  My treadmill speed was at 4.  300cal burned for 2 miles.  It took me 35mins.  I went to the lab around 8:00 PM to get my blood drawn.
At night I took 10mg of propanolol

May 6 2014
Pulse at 69 when I woke up in bed.  I took 5mg of methimazole at breakfast.  Highest pulse was at 82.
I noticed dry skin on left hand and a bit itch.  Got the results from last night's blood test.
Dr said I have to hold on methimazole for a week.  I replied back asking her to clarify how long should I stop and how many mg of methimazole should i continue with.
Took 10mg of propanolol at night.
T4=0.4  T3=2.4 

May 7 2014
I woke up and my pulse was at 70bpm.
I received an answer from my doctor. 

I have to stop methimazole until this Friday, then on Saturday start 2.5mg of methimazole.  Now my next question would be when should I go and get my blood drawn again?  I guess, I'll take it one step at a time and see how I feel.  It's kinda coming together.  Now if I feel a bit scaly on my left hand that means I'm getting too much of methimazole.  As far as water retention, propanolol was the culprit.  The dry itchy skin decreased towards the end of the night.
Took 10mg of propanolol at night.

May 8 2014
Woke up my pulse was at 73bpm.  Methimazole still on hold.  Prior working out my pulse was at 79. C BM
I still have water retention and a bit of dry skin.  Hopefully it clears out tomorrow.  BPM today was at higher 80s to lower 90s.
Took 10mg of propanolol before bed time.

May 9 2014
Woke up with 72BPM.   Methimazole still on hold.  Prior working out my pulse was at 79. C BM
I still have water retention and bit of dry skin.  Stayed at my bro's house today.  Had a bit of a headache before going to sleep.  Maybe because I ate lunch really late.
Took 10mg of propanolol before bed time.

May 10 2014
Woke up with 73 BPM.  I took 2.5mg of Methimazole today.  BPM today was at higher 70s to lower 80s.  I took 10mg of Propanolol at night.

May 11 2014 Mother's day
Woke up with 71BPM.  I took 2.5mg of Methimazole.  BPM was at upper 70s to lower 80s.  I took 10mg of propanolol.

May 12 2014
Woke up with 78BPM.  I took 2.5mg of Methimazole.  BPM was at upper 80s to lower 90s.   I noticed dry skin on my hand.  I ate boiling crab crawfish today.

May 13 2014
Woke up BPM at 77.  C BM today after waking up.  I noticed I have scaly skin on my hand.  I took 2.5mg of Methimazole.  I did my workout today with a HR average of 150BPM.  At the end of the day, my husband came home from work complaining about the hot weather.  I told him it's not that bad.  It felt  like it was 70-75F.  He said it's 94F outside.  Then he asked "which are you right now, it is hot and you feel cold"?  I said hypo(sensitive to cold).  I didn't put clues together up until now.  I must be overdosing on Methimazole again(scaly skin) and the hot weather didn't even bother me.  So tomorrow I will hold on Methimazole for one day not to exceed more than 2 days as per Dr's orders if I noticed hypo symptoms.

May 14 2014
Woke up BPM at 79.  Normal BM after waking up.  I checked the weather app and it looks like it will be a 94F today.  Stopping Methimazole today.  I did my workout 140 is my average BPM.  At noon time I could feel the warm weather.  I was pretty happy that my body was detecting right temperature today.  I actually felt great today.  I will check my skin tomorrow if it clears up in the morning.

May 15 2014
Woke up with 71BPM. C then D BM.  My skin was kinda clearing up.  Took 2.5mg of Methimazole.  Since I've been on Methimazole I usually don't get hungry unless I starved myself.  I noticed some hunger today.  Going to the lab tomorrow to see where my T4 & T3 are.

May 16 2014
C BM.  Woke up then went to the lab to get my blood drawn.  At the lab there was this lady complaining, I stood in that line for 15-20 minutes waiting for her.  She didn't want anyone to get thru.  At that point I have a hunch that my results would be close to the standard range because I didn't care that much about waiting in that line hearing that lady complained.  After I got home I decided to hold on Methimazole for today until I get my results.  I did my workout today.  At dinner time my husband gave me 1 glass of wine.  After dinner I just felt the wine hit me pretty quick.  I was drunk and had a headache.  It felt like I was hungover.  My husband came in the room and said our son wants to go to the park and to come and picked them up afterwards.  I said I can't drive, I'm drunk.  He said OK and I continued to try and rest.  After 3 hours, I just noticed my son trying to wake me up.  I got up and drank more water.  I felt like throwing up.  After an hour during that time, I noticed my hungover was getting better.  The wine hit me hard quick and it was also quick to get out of my system.  I am now officially lightweight when it comes to alcohol.  At 10pm, I received a message from the doctor "Your thyroid level is almost normal. Please continue your current treatment if you are feeling and doing well. "
Blood test results: T4= 0.8   T3 = 4.5

May 17 2014
C BM.  Since my results for T4 & T3 were close to normal range last night, I've decided to hold on Methimazole for one more day.  Today was a good day.  I was less stressed.  I did my workout and even some chores around the house.  

May 18 2014
N BM.  Woke up from a bad dream then checked my pulse 82BPM.  Maybe that's why it's a bit high.  I took 2.5mg of Methimazole.  I noticed my weight was going down since May 16 2014, now I'm at 130.6.  My workouts were finally paying off.  I think as long as Im close to standard range on my T4&T3, I could see results of my weight loss with my workouts.  But if I'm hypo it will be highly unlikely to lose the weight.  I was so glad with my T4&T3 results last Friday, because it was kind of frustrating not seeing results for my workouts for a good 2 weeks.  

May 19 2014
This morning my pulse was at 75BPM.  My scaly hand looks better today.
Methimazole on hold today.  

May 20 2014
Methimazole on hold today.

May 21 2014
I took 2.5mg of Methimazole today.  My sides started hurting while running.

May 22 2014
N BM. 82bpm waking up, I had another dream.  I took 2.5mg of Methimazole.  I was a bit nervous going to the dentist today, although I shouldn't have.  Maybe because I only slept for 5-6 hours last night.  I felt jumpy like I have an anxiety feeling.  Towards noon time I was tired and needed some nap time.  After taking a nap, I felt better.  I could still feel a little anxiety.  I decided to get my blood drawn to see where my T4 & T3 are.  I went to the lab at 8:00pm.

May 23 2014
N BM.  76BPM waking up.  I weighed myself and now I'm at 128.6.  I received the results of my blood test in the afternoon.  Blood test results: T4=1.1 & T3=5.3
Well, it's still under control T3 is a bit higher.

May 24 2014
N BM.  When I woke up my pulse was at 69-74BPM.  Then before cooking breakfast it was at 82BPM with a blood pressure of 109/64.  I took 2.5mg of Methimazole.  A little jumpy prior Methimazole but after my anxiety went away.  I drank some mix drinks at noon and 1&.5 shots of vodka at night with friends.  I didn't get the same buzzed as when I drank wine the other day.  I was trying to test my limits on alcohol.

May 25 2014
77-82BPM.  When I was working out, I noticed my knee was kind of giving out.  There's something wrong on my knee joints.  It felt like when I was really hyperthyroid.

May 26 2014
83 BPM waking up. I took 2.5mg of Methimazole.   At Dinner time we went to a bbq party.  Some people were smoking.  After we left, I could still smell the smoke lingering.

May 27 2014
N BM.  79BPM when I woke up.  I woke up late today about 7:30AM.  I was probably tired from the Memorial day weekend.  After working out, I was tired throughout the day.  My Dr replied back and said I could stop my propanolol intake.   I still smell cigarette smoke and knees still bothering me.

May 28 2014
75BPM waking up.   I took 2.5mg of Methimazole.  I can still smell a bit of cigarette.  Had a tiny muscle spasm.  Throughout the day my BPM was in 100s until I sat and laid down on the bed.  Knee joints are still bothering me after working out.

May 29 2014
Woke up with 86BPM.  I took 2.5mg of Methimazole.  I can still smell a bit of cigarette.  Throughout the day my BPM was in 92-100 until I sat and laid down on the bed and then it went down to about 85-86.  Knee joints are still bothering me after working out.  I went to get my blood drawn tonight.  I wanted to make my blood drawn time consistent.

May 30 2014
75 BPM waking up then85 BPM during breakfast.  My pulse is still a bit high.  I wanted to take Methimazole but I'm still waiting for the blood test from last night.  I could still smell cigarette smoke but only a little bit not like a lot during the past couple of days.  My knee still felt funny.  Finally the results came in with my Dr's comments to double up my dose because I'm getting more hyperthyroid.  I only took 2.5mg of Methimazole.  I wanted to see how far will this dose get my T4&T3 down.  Throughout the day my BPM was  95-99 then going down towards the end of the night.
T4=1.8
T3=7.5

May 31 2014
Woke up to 77-80BPM.  I took 2.5mg of Methimazole during breakfast.  After an hour I started working out.  My knees were still bothering me.  Post work out my pulse is 109BPM, so I took another 2.5mg of Methimazole.  I change me mind about taking 2.5mg everyday until Thursday.  I'll just follow what my doctor said.  Towards dinner time my pulse went down to 96.  Then prior to bedtime my pulse was about 83BPM.  Maybe I'll just take 2.5mg of Methimazole tomorrow.  Knee joints still hurting and the cigarette smell was still there. 

Wednesday, April 30, 2014

April 30th 2014

April 20, 2014
On April 16th, my body felt so great.  The puffness on body was slowly going down and muscle spasm lessen.
I went to the main lab and had my blood drawn on April 19 in the morning. At night I received the results.
Components     Standard Range     My value
 T4                    0.6 - 1.6 ng/dL            1.1
 T3                    2.3 - 4.2 pg/mL           8.6
 TSH                 0.40 - 4.0 mIU/L      <0.01

The Doctor informed me that I was getting hyperthyroid without Methimazole.  I was advised to resume 10mg per day 1-2 days prior my April 30 visit.















When I woke up my pulse is at 74. 
I saw my Dr today.  She said I am the only person she knows who is sensitive to methimazole.
She asked me what are the symptoms do I feel when I'm hyper or hypo.
After 2 months of this up and down cycle I took it upon myself to know clues as to when something changes in my body.  I don't want to puff
She then wanted me to:


Please:
1. Start methimazole 5mg a day today.
2. If you feel your heart rate is slower or any other signs of low thyroid, then take 1/2 pill of 5mg (2.5mg) that day. If you really feel you are hypothyroid, skip methimazole one day. Please try not to skip 2 days in a row.
3. If you have muscle spasm, faster heart rate, or any other sings of high thyroid, then take 5mg of methimazole.
4. If you feel really hyperthyroid, take 10mg a day.
5. Repeat another labs in 1 month. If not stable, then we will repeat the lab at that time. Weekly standing FT4 and FT3 lab orders are already in the system for you.
6. If you have sore throat, fever, infection, or skin rash or itchiness, stop methimazole and call MD immediately.
7. Follow up appointment for 2 months.
8. Do thyroid blood tests about 2-3 days before your visit.
~Thank you~

I took 5mg that day
Through out the day the highest pulse I had was at 96 after doing errands and carrying my son every store we go to.
My pulse prior bedtime is at 76.

Monday, March 31, 2014

March 2014

March 15 2013
Continued taking 30mg of Methimazole and 40-120mg of Propanolol everyday.  Today I noticed my weight gain and puffiness of my body.  My body puffed up like that marshmallow character from ghostbuster.  I sent a message to my doctor informing her about my weight gain.  Since my last doctor visit, I've gained 5lbs now at 130lbs.  I asked her if I can start working out.  My average BPM was around 82-87 & 91x1.

March 16 2013
I had Hives & muscle spasms today.

March 17 2013
The doctor replied back and said I have to cut down what I eat to half of what I used to.  She also said recheck my labs now and she'll let me "go back to intense work out, if they look better.  Not-intense work out is fine for you now while we wait for your lab results".  So I went online and rechecked my labs from feb 19 and the values were high.  I thought that's what she meant.

March 18-21 2013
I had Hives & muscle spasms today.  I've been googling a combination of keywords, "hives muscle spasms methimazole propanolol.  Some sites suggested that hives maybe one of the side effects of Methimazole.

March 22 2013
I thought the hives and muscle spasms were going to go away, but it didn't.  So I sent a message to my doctor.

March 24 2013
A NP called me and said my meds doesn't cause hives and muscle spasms.  She also said to continue my meds.  She also informed me that I have a standing order of blood test.  So I guesses this is what my doctor meant when she said to recheck my labs now.  That I have to go and get my blood drawn at the lab.   Now it made sense.

March 25 2013
I went to the blood drawn place around noon.  My results came back T4=.4 & T3=1.6 
The doctor told me to stop Methimazole until my next doctor visit this week.

March 28 2013
I went to see my doctor today.  She told me that I need to stop Methimazole because of my hives and itchiness.  She said I should consider RAI.  Well when she told me that, I was disappointed.  From reading different forums about my Grave's disease and RAI, my Grave's would get worst if I take RAI.  So I told my Dr, to reconsider and put me on lose dose Methimazole because RAI will not going to be an option for me.  If it doesn't work out then will talk about other options.  I felt pressured at that time by my Dr.  Good thing my husband was researching about this also and really encouraged me not to do the RAI.  So I was put on 10mg/day of Methimazole after I left the Dr's office and then just go back on 4/9 or 4/10 for blood test to see where T4 & T3's are at....


Friday, February 28, 2014

Feb 2014

Feb 19th 2014
I saw the Endocrinology doctor today and she checked the size of my neck and thyroid.  She confirmed that I have Hyperthyroid and Grave's disease.  She asked me if I know what Grave's disease was?  I told her that it made my eyes bulge.  She explained to me that in Grave's disease, the eye and the thyroid contains the same muscle composition, that's why the immune system attacks the thyroid gland also.

The doctor told me 3 options I have.
a.)  Take anti-thyroid.  I might need to take the meds up to 2 years to resolve my disease.
b.)  Take one time Radioactive Iodine pill but there might be a possibility to make my Grave's disease worst.
c.)  Thyroidectomy.  It is a surgery that removes part or all of the thyroid gland.

I told the Doctor, I like the anti-thyroid or thyroidectomy option.  So she started me that day on methimazole and propanolol. 

Instructions for meds:
taking methimazole 10mg 3x/day.
propranolol 3x/day and always check pulse prior to taking propranolol. If pulse is >80, take 2 pills of 20mg (40mg) if 80-60 take 1 pill (20mg) if <60 hold the dose. 

I asked her if my eyes would go back to normal while taking these meds.  She replied that "Referral to eye clinic was made for you today. Please wait to hear back from them".
Prior to ending the consult.  The doctor needed some blood drawn and directed me to the lab area.  They took about 2 vials of blood from me.

She informed me that potential side effects of methimazole is liver injury.  Please stop methimazole if I have fever, infection or sore throat and call MD immediately.

Follow up in 1 month.
My homework:
Take it very easy for the next 4 weeks. No strenuous exercise. Walking is OK. No running.
Pregnancy is contraindicated now.

Feb 22, 2014
 I received the results of the blood test
Components     Standard Range     My value
 T4                    0.6 - 1.6 ng/dL          >8.0
 T3                    2.3 - 4.2 pg/mL         >30.0
 TSH                 0.40 - 4.0 mIU/L      <0.01














Tuesday, January 7, 2014

Family members saw signs of thyroid problem

Aug 2013
While preparing for my son's 2nd birthday, my cousin saw my eyes without glasses and it was bulging.  She told me to get it check because her dad had that same symptoms, when he had thyroid problems.  During that time I knew little about thyroid problems.  Another cousin also noticed that I've gotten darker. "I haven't seen you this dark".  So maybe it was because of Maui in May.  I didn't pay much attention to it.

Dec 2013
In Dec the family went for a vacation in the Philippines.  Another cousin and aunt noticed my eyes were bulging also.  They told me to get my thyroid check out.

Jan 2014
When we got back to the US, I immediately called my physician to get an appointment.  Jan 13 was the revelation day.  I went to the doctor's office.  I remember being an hour early for this appointment.  Finally, the nurse called my name.  She took my blood pressure.  I ask if everything was ok.  She said it's ok my blood pressure was a bit high but nothing alarming.  I waited for another 30 minutes to see my doctor.  Finally, the doctor arrived.  She confirmed my bulging eyes.  I told my doctor that my aunt and uncle on my dad's side had history of hyperthyroidism.  Before she dismissed me, she ordered blood test to check my tsh levels.  That night I received an email confirming that I have grave's disease and hyperthyroidism.  She sent me referrals to endocrinology doctors.  I remember what my cousin told me.  "Make sure you have a good doctor because  mine wasn't for a while.  My doses were incorrect."  So I went to different websites looking for a good endocrinology doctor the one that specializes in thyroid and eye disease not the diabetes concentration.